Monthly Archives: January 2016

Just Remember

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It has been two weeks since Silas has passed, yet it already feels like he has been gone for two months.  I can’t bring myself to delete the app on my phone that tells me how many weeks and days pregnant I am suppose to be-23 weeks, 3 days.  This second week has been so much harder than I thought it would be.  So many emotions have come up.  We have also started back to our “normal” routine:  homeschooling, church, chauffeuring the kids to different activities, cooking, cleaning, laundry, and Boyd needing to attend to his law practice.  All of that combined has created chaos within me.

I struggled with what I wanted to write today.  I want to be positive and post about how well things are going, but in the end I decided I needed to tell what I (we) are really feeling.  I felt impressed to share our true grieving process.  That maybe others who have gone through or are going through a loss can see that what they may be feeling is ok.  A friend of ours who recently went through a similar situation shared with me how it was “ok” to still be crying, angered, and upset months later.  Knowing that information helped me to feel like I was not just losing it, or a hot hormonal mess.  Although I am sure my postpartum hormones are playing a part in it.  Also I feel there is a stigma that being a Christian means you have to be positive all the time, and by showing emotions that you are not trusting in God-lacking faith.  I was actually told this during our journey with Silas.

When I look in the mirror I see in my eyes the toll the stress and grief has taken on me.  I have been very irritable with my children which causes me more guilt.  Some days I feel like I have emotionally checked out and neglecting my other children.  While in the hospital delivering Silas I said I would appreciate my kids more, spend more quality time with them.  Here I am doing the opposite.  I know it has only been two weeks and I need time to get use to the idea he is gone, but it is so hard to think logically while you are in the storm.  I have days where I don’t cry and can smile at my kids silliness.  But there are many days where all I do is fight the tears and cry so hard I can’t breathe, don’t want to get out of bed, and grumble to God about how this is not fair.  I feel like the child in me comes out and just wants to throw a tantrum and say “It’s not fair” with my arms crossed tightly across my chest.  At the end of it all my only hope is in Him.  I know I would be completely lost without Him.  This journey would be unbearable if I did not have the comfort of my Savior, my Heavenly Father to comfort me. To have hope that I will see Silas again one day.  Yes, I do still have the peace within me, but some days it is just too hard to allow it to fill me.

I have many traditions that I follow each time I have a new little one, and I wanted to make sure I did that with Silas.  I have a glass door on my wall with all of my families pictures in each pane.  I had two of Silas’ pictures blown up and I put them in with his brothers and sisters.  At Christmas Boyd surprised me with my second mothers ring.  Yes, a second one.  My first ring only held five stones, so I outgrew that one real quick.  We joke that he should have bought a tennis bracelet to hold all the birthstones.  I have wanted a second ring because it felt weird to me to only wear a ring that represented half of my children, but we never made it a priority.  Boyd was thoughtful and picked out a beautiful second ring.  We were waiting to put in Silas’ stone because at the time we were not sure if he would be a May or June baby-my due date was May 27th.  When he passed I called them right away to have them put in a garnet stone.  They already had the ring due to sizing it.  I went to pick it up yesterday and the lady at the desk asked how my baby was in that voice you use when talking about babies.  I don’t mind sharing his story, but I always get uncomfortable with the other persons response or uneasiness after I tell them what happened.  I felt bad for her actually because I could tell she felt so awful for what she had just said.  But of course she had no way of knowing what had happened.  I put the ring on and cried the whole way home.  Sitting in the car long enough for the redness in my face to go away so it did not look like I had been crying.  Not sure why, but I don’t want people to know I cry.  I have a hard time letting people see I don’t have it all together.  I guess that is my point in sharing this blog.  Ever since I was a little girl I collected Precious Moments figurines.  When I started having children I would pick out a figurine that reminded me of them.  I found one that just stuck out to me and what I thought my Silas would look like. Ok, I know I have a lot of traditions, this is the last one that I have accomplished so far.  Yes, I have a few more that I will post later as they happen:)  I have a charm bracelet that Boyd bought me at my high school graduation.  Everywhere we traveled I would buy a charm from that place.  When we started having children I would buy a charm that had something to do with their name.  While picking up my ring I bought a charm of a tree.  Silas’ name means woody, of the woods.  Just for fun I have posted a few pictures of my traditions, except the charm as it will not be ready for a few weeks.  In the picture with the Precious Moments is a few gifts we have also received-bonsai tree, needlepoint, and teddy bear.  We have many future plans on how to keep Silas’ memory alive in  our home. So I am sure you will see them soon.

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On a happy note, Silas’ blog has now been seen in fourteen countries-US, United Kingdom, Brazil, Canada, Australia, Columbia, Malaysia, Croatia, Philippines, Italy, Argentina, Portugal, Germany, and France!!!  I have had so many people follow his story.  That is what keeps me posting.  To encourage or share with others that when tragedy hits it can be so overwhelming, but there is hope.  It is ok, to feel totally crippled by it, but we have someone who can not just walk beside us during theses times, but who will actually carry us through them.  I just have to remember that.

 

Tiny Little Hands and Feet

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I got out Silas’ molds that they made in the hospital and put a clear glaze over them.  I couldn’t resist sharing this picture.  It is amazing how tiny, yet perfectly formed his hands and feet were.  Today marks a week since I last held him.  I have both peace and sadness throughout each day.  My mind says one thing, but my heart says another…IMG_0870.JPG

Silas’ Day

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Silas’ Day

 

We got home from the hospital on Saturday afternoon.  We spent the next day recovering and spending time with our family.  The last few days have been a constant revolving door of us leaving and family coming in to babysit while we went to many appointments.  So it was nice to have a full day with them.  We also spent time discussing what we wanted for Silas’ funeral so we could be prepared for our Monday morning appointments with the funeral home and cemetery.  The kids had lots of questions.  Where is baby Ocho?  When will we get to see him?  Why do you put him in the ground?  My older two boys have only been to one funeral when they were little, this was foreign to all of them.  We had been open with them from the start about how sick Silas was.  So I think they were somewhat comfortable with everything going on.

I woke up Monday morning to extreme pain in my head.  I could hardly stand up.  I knew this was a possibility  due to some issues we had at the hospital with my epidural.  I knew right away it was a spinal headache.  When they did my epidural they went through the epidural space (a wet tap).  Over a few days that hole allowed the spinal fluid to leak out around my brain.  My brain was no longer floating, but being pulled down, which caused the extreme pain.  I was so upset and crying.  I thought “God, what more do I have to endure?”  We went to our 9 am appointment at the funeral home with me walking hunched over.  The only way to get relief is to bend all the way forward or lay completely flat so the brain was not being pulled down.  I was praying that as soon as the appointment was over I could get in to do a procedure called a blood patch to help with the issue.  I felt so silly walking into our appointment hunched over and with a look of complete agony.  I briefly explained to the person we met with what was wrong, and that I was not losing it over the passing of our son.  It is funny how time and time again we make a plan of how things will go only to be reminded that it is not in our hands.  Thankfully, we had discussed ahead of time what we wanted.  So it made the meeting short.  Newcomer is a generous funeral home who will offer their services for free to parents who have lost a small child.  They were very kind and easy to work with.  The meeting was not as hard as I thought it would be, probably due to my medical distraction.  Not a day goes by that we don’t shed tears several times a day, but the Lord always pulls us out of our despair to see the blessings He has given us.

I was able to get the blood patch done immediately after our appointment.  I will save you all the boring details of what is involved.  After four epidural punctures, birth, and a total of eighteen sticks for various reasons in three days, I did get relief instantly.  Yes, I feel I am entitled to complain:)  In order to make the procedure work I had to lay down and not lift for two days.  Not an easy task for someone with a house full of kids and a home neglected over the past few days.  We made it out just in time to make it to our appointment at the cemetery.  God blessed us with a beautiful, secluded area for Silas among many trees.  We left the cemetery with gratitude that God had provided everything we wanted for Silas and that I was no longer in pain.

 

During the next few days leading up to the funeral became very emotional for me.  I think having to lie down so much left me with a lot of time to my thoughts.  I was suppose to have a little boy at home nestled on my chest at wee hours of the morning, Olive was suppose to be a big sister to her future best friend, and Boyd was suppose to have countless hours teaching him about Jesus and instilling a passion for music.  Just when I was starting to go into that dark tunnel that never ends I got on strongsilas and saw that Malaysia had been added to the countries on Silas’ journey.  I have to constantly be reminded that God’s purpose for Silas’ life may not be what we had in mind, but it makes my heart turn from sadness to joy when I know maybe one more seed had been planted due to my little boys journey.

We had Silas’ service today.  A very cold day, but the sun was shinning and there was no wind.  Boyd carried his white little casket to the burial spot.  We had a beautiful spray of white and ivory baby roses.  Boyd had prepared a heartfelt message for Silas’ service.  He told the story behind how we decided on the name Silas and the nickname Ocho.  He read scripture of the life of Silas in the Bible and Psalm 18.  Our pastor and his wife played acoustic guitar and led us in song.  I am sure you know what song we sang-He is with us.  He closed in prayer and told Silas we would see him again.  I sat there crying over the missed opportunities with him, but I so look forward to spending my time with him in Paradise.

The pictures in his memorial folder were of an ultrasound profile picture, and of his little feet resting in his daddy’s hand.

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A dear family friend offered to do a delicious, huge meal for our family after the ceremony.  It was such a blessing not to play “host” for the day, but to enjoy time with family and friends.  Throughout the week we have received such beautiful gifts for our Silas-flowers, meals, a bonsai tree, a needle point creation, and a donation in his name to the back2back missionary organization in Mexico that Silas visited while in the womb.  Boyd and I have been truly touched by the thoughtfulness and generosity by our family and friends.  We thank you so much.  And most important thank you for all the prayers that have gone up to God for our whole family over the course of the last two months.  Sorry if this post is poorly written, but I have a 16 mo. insisting on climbing all over me as I type.

Silas we love you dearly and you will always be a part of our daily lives.  I know you are not  here on earth anymore, but we will visit your grave frequently as a place to remember you. I want your siblings to grow up knowing you are their brother.  My sweet Silas have fun running around up there with your new little heart!

 

 

 

 

 

 

 

 

 

 

God Is Always Good

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The last few days have been a wave of emotions.  The delivery of Silas was about what we expected, but with a few glitches along the way.  The actual delivery of him was my longest.  I was surprised because I had in my mind that since he was so premature it would go fast.  I think it was more of a mental issue of holding back due to fear of seeing him be so little and not hearing his cry.  We got to spend as much time as we wanted with Silas.  It was such a precious time for Boyd and I.  The doctor and nurses went way beyond their normal duties to make this process as comfortable as possible.  We had excellent care.  They had so many keepsakes of him made for me to take home.  God gave me such a caring husband to go through this with.  He is my everything-God is good!

I had mentioned this in a Facebook post, so it may have already been heard.  Of course the day we went in for the induction was such a sad, surreal day.  I had such a heaviness in my heart.  So many things going through my mind.  I had already been poked ten times that day and was just not ready to face what lied ahead.  My nurse from my OB’s office came in to see us.  I was surprised by her taking the time to come in.  She talked for a bit telling us how sorry she was that we had to go through this.  She then began to cry and tell us how much we had touched her life.  That she saw how we handled this situation so different than she had seen before.  That we handled it with grace.  She said that we had taught her how to handle situations that may come up in life differently now.  That we have encouraged her to be a better person.  I was bawling as she spoke.  We had named Silas after the missionary Silas in the Bible who traveled far to spread God’s word.  Boyd and I had talked and dreamed that maybe one day as he got older that he may travel abroad and minister to others.  What the nurse saw with us was the light of Jesus shining through us.  Through Silas’ journey he ministered to others by our actions.  At that moment I had shed my first tears of happiness since this all began.  Silas had not passed away just because.  He already started his missionary work.  I felt such a heaviness lifted from my heart.  I had such anger I didn’t even know I had of him being taken away too soon, but that had been released.  The day was still extremely hard, but I knew I could go about the delivery and know that my Silas made a difference.  Then tonight I got on the blog and saw that people from Canada, US, Italy, Brazil, and Germany have read this blog.  I smiled and said there you go Silas you traveled abroad to many places spreading His faithfulness-God is Good!

Tomorrow we go to meet with people from the funeral home and cemetery to make all the arrangements.  Something that I never thought we would be doing at such a young age, let alone for one of our children.  It feels so weird.  Kind of like I am watching a movie play out and it is not really me.  We found a beautiful cemetery close to our home with trees.  That was important to us since Silas’s name means of the woods-woody.  We wanted something close so it was easy to visit when we wanted.  We originally thought we would buy nine plots so we could all be together, but we quickly realized that would not work.  As our other children become older and marry they will want to make their own choices.  So Boyd and I decided we would be buried with him.  We will have an intimate burial with just the immediate family this week.  Something special that all of us could hold onto.  Please pray for us during this time as I know it will be very hard to do and hard for our children to understand.

I read this saying that is a little cliche ish, but thought it was so true.  You were budded on Earth to bloom in Heaven.  God immediately  gave Silas life when I conceived him, but he was not meant to grow here on Earth, but in Heaven.

MEETING SILAS

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Silas William Lee Gentry was born at 11:10 pm on Friday.  He weighed 1lb. 5oz. and was 10 1/2in. Long.  He is beautiful in so many ways.  I am honored God chose us to be his parents.  We love you Silas! We will look forward to the day we get to see you again in heaven my sweet angel.

Silas’ journey to Heaven begins

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I startled awake at 3:41 am on thursday.  I immediately thought he is gone.   I prayed for peace and for his journey to heaven.  But I still had hope I was wrong.  Later I used my Doppler and got the same 70-80s heartbeat.  I realized he had not moved that day and that I was hearing my own heart.  We went to the hospital where they confirmed our worst fear.  Silas had passed that day.  I will deliver our precious boy today.  Lord please help us see You in this time.

Time Stands Still

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It has been almost a week since we received the news on Silas.  It feels like yesterday that we were sitting in that little room shocked at his diagnosis, but yet it feels like weeks.  Once getting home we immediately were thrust into our parenting duties of our other seven children who were mostly still sick from the stomach flu.  We had to try and explain what will be happening to Silas on several different age levels.  Several doctor appointments had to be canceled and several new ones made.  Each time having to retell what was going on.  Boyd and I also had to do something that I never dreamed we would have to do- think about what we wanted to do when Silas passes away.  Needless to say it has been a whirlwind.  Each day filled with smiles of my children being silly or doing something ornery, sadness at the reality of what is going on, and frustration and some anger as to the big “why?”,  and the paranoia of can I still feel him moving.  The day we got back Silas’ baby blanket that I had someone make had arrived along with a few outfits I had bought for his hospital stay.  It took me several days to open them.  When I did all the emotions came flooding out.  I was completely broken at that point.  But as on so many occasions my God wrapped me with His merciful arms and gave me strength to walk out my bedroom and face the rest of the day.

We go Friday for my amnio at which point we will have another ultrasound done and will see how much the hydrops and the heart failure has progressed.  We had declined the amnio early on due to the risk of miscarriage, but now we think it is the best decision to see if any of his conditions were caused by genetic or chromosomal issues.  This information could be helpful for when our own children start families.  We also bought a fetal doppler to keep track of his heartbeat.  We thought it would help alleviate all the guessing if I had felt him move that day.  His heart rate has slowed considerably.  It stays around 70-80s.  Each step in this journey still hits hard even though we know he is very sick.  Just hard to accept.

Many friends and family have been such a huge support in prayer and just listening.  Our church body has also been faithful with prayer and providing meals this week.  It has been such a huge blessing to have one less thing to think about and prepare.

I know some will question or wonder how I can put such a personal situation out there for everyone to see.  We even at times have typed something up and deleted it because we thought “This is too personal, I don’t want the attention from it all right now.”  But I want to be an example to people that we can be faced with the most horrific situations in life and have all those normal responses-anger, sadness, wanting to run, to question, and just quit-but that does not mean our God has left us or forgot about us.  I posted this song on FB and I think it tells it well.

He Is With Us-Love & The Outcome

Remember when your hope is lost and faith is shaken
Remember when you wonder if you’re gonna make it
There’s a hand stretched out through your deepest doubt
We can’t pretend to see the ending or what’s coming up ahead
To know the story of tomorrow
But we can stay close to the One who knows

We can trust our God
He knows what He’s doing
Though it might hurt now
We won’t be ruined
It might seem there’s an ocean in between
But He’s holding on to you and me
And He’s never gonna leave, no
He is with us, He is with us
Always, always
He is with us, He is with us
Always

We believe there is purpose, there is meaning in everything
We surrender to His leading
He wants nothing more than to have us close

We can trust our God
He knows what He’s doing
Though it might hurt now
We won’t be ruined
It might seem there’s an ocean in between
But He’s holding on to you and me
And He’s never gonna leave, no
He is with us, He is with us
Always, always
He is with us, He is with us
Always

Our faith is sealed
Our hope is real
Come what may
We’re not afraid
Our faith is sealed
Our hope is real
Come what may
We’re not afraid
We’re not afraid

We can trust our God
Always, always
We can trust our God
Always, always

We can trust our God
He knows what He’s doing
Though it might hurt now
We won’t be ruined
It might seem there’s an ocean in between
But He’s holding on to you and me
And He’s never gonna leave, no
He is with us, He is with us
Always, always
He is with us, He is with us
Always, always
He is with us, He is with us
Always, always
He is with us, He is with us
Always
Our God is with us

Read more:  Love & The Outcome – He Is With Us Lyrics | MetroLyrics

We still pray and have not given up hope that God can perform a miracle in our little boys life.  My faith in God has not wavered.

Silas

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We went to CHOP expecting to receive news on how hard the road would be to get Silas in a good position once he was born, but never thought we would be told our little boy would not even make it to birth.

If that day was not going to be hard enough I woke up with the stomach flu.  Not ideal for hours of pressing on your stomach to get pictures of his condition, but I was determined to get the best advice for him.  We had to be at the hospital at 7:30am and did not leave until 5:00pm.  I had a two hour echo, two hour ultrasound, and a fetal MRI.  In between those tests we met with a genetic counselor.  At the end of the day is when we were able to talk to the physicians about their findings.  Though out each test I could pick up on other conditions happening within his body, but was unsure of what it all meant put together.  By the end of the day I was pretty sick and exhausted, but was anxiously awaiting to hear what the plan was for him.  The news was devastating.  We were told that Silas had an extreme case of HLHS, which we had know, but that he also had another defect of his pulmonary valve.  Dr. Rychik explained they had only seen a few cases like his.  With those two defects combined he was going into heart failure.  Due to the heart failure he was not able to handle the fluid building up. This has caused a condition known as Hydrops.  It is where they find fluid build up in at least two areas of his body.  Silas has extreme fluid in his stomach, bilateral pleural effusion, and in the brain.  He will pass away before he is born at which time I will be induced and deliver a little boy.  Or I will develop a condition called Mirror Syndrome where my body mirrors what is going on with him and can be life threatening for me.  We both will be monitored closely until either of those happen.  I will also get an amnio soon so we can see if this was caused by a chromosomal or genetic disorder we missed in the bloodworm.  Information to help with future babies or when our children start their own families.  I do not like to cry in public, but how could I not break down completely with this news.  We knew our lives would completely change when we had him due to his HLHS, but we were just happy to have a chance to fight for him, to live a life with him no matter his condition.  Now we feel robbed of that.  I could not wait to get back to our hotel room and just let ourselves mourn our son.  It was the worst night.  Still is.  The waiting is awful.  To still feel him kick just reminds me of what I won’t have.  I will not just simply except that he will die just because.  I believe God gave us Silas for a reason and will take him home early for a reason.  If I don’t believe that my sadness will turn to bitterness.  I truly trust God and his plan, but it still feels cruel.  We may not see His plan for a long time as to why.  I know my Heavenly Father does not do things to His children to be mean.  He is still good.  He will guide us through this time.

He will always be our Strong Silas!